• Perguntas frequentes
  • Glossário
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Perguntas frequentes

Why are some conditions more suitable for gene and cell therapies than others?
There is an approved treatment available for my condition - why can't I receive it?
How to look for approved medicines?
How are medicines developed and approved?

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Glossário

Adeno-associated virus (AAV)
Adenovirus
Adult stem cells
Antibody
Antigen
Base editors
Cas9 nuclease
Chimeric Antigen Receptor (CAR)
Chromosome
Clinical trial

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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
    Showing 5 of 168 results.
    Page 17 of 34
    2019

    Patient and public involvement in research

    Interviews about PPI, with videos and text by Healthtalk online
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    Research Field

    • General

    Organisation Type

    • Third Sector/Charity

    Development Stage

    • Research and Clinical Development

    Audience

    • Researchers/Developers
    • Public/Patients
    • Charity Sector
    • Industry
    • Other groups

    Country

    • UK

    Content Type

    • Resource

    Public Involvement Network Advisory Group Terms of Reference

    Terms of reference for patient carer representatives that help inform Scottish Medicines Consortium (SMC) processes, published by Healthcare Improvement Scotland (HIS) and SMC
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    Research Field

    • ATMP/Gene Therapy Development

    Organisation Type

    • Third Sector/Charity

    Development Stage

    • Health Technology Assessment
    • Service Delivery

    Audience

    • Researchers/Developers
    • Public/Patients
    • Charity Sector
    • Industry

    Country

    • UK

    Content Type

    • Resource
    2019

    Researchers' experiences of Patient and Public Involvement

    Videos and transcripts from researchers talking about experiences with PPI by Healthtalk online
    Visit this Resource

    Research Field

    • General

    Organisation Type

    • Third Sector/Charity

    Development Stage

    • Research and Clinical Development

    Audience

    • Researchers/Developers
    • Public/Patients
    • Other groups

    Country

    • UK

    Content Type

    • Resource
    2018

    Engagement with patient organisations

    Statement outlining how GlaxoSmithKline (GSK) engages with patient organisations
    Visit this Resource

    Research Field

    • Pharmaceutical

    Organisation Type

    • Industry

    Development Stage

    • Identifying/Prioritising Patient Need
    • Research and Clinical Development

    Audience

    • Researchers/Developers
    • Public/Patients
    • Charity Sector
    • Industry

    Country

    • UK

    Content Type

    • Resource
    2020

    Improving patient access to gene and cell therapies for rare diseases in Europe.

    Report for the Rare Impact project - improving access to ATMPs by European Organisation for Rare Diseases (EURORDIS)
    View this Resource

    Research Field

    • ATMP/Gene Therapy Development

    Organisation Type

    • Third Sector/Charity

    Development Stage

    • Service Delivery

    Audience

    • Researchers/Developers
    • Public/Patients
    • Charity Sector
    • Industry

    Country

    • Europe

    Content Type

    • Resource
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