Découvrir
- Découvrir
  En apprendre plus sur la thérapie génique et cellulaire
- Educational Resources Directory
  Educational Resources Directory
- INTENS
  INtestinal Tissue ENgineering Solution
- LEARN
  Listening to the experience of participants in neurosurgical trials
En apprendre plus sur la thérapie génique et cellulaire
Research Pathways
- Parcours de développement
  Bringing new therapies from the lab to patients
- Ressources Clés
  Transférer les nouvelles thérapies du laboratoire aux patients
- ATMP Engage
  Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group
- Actors and Network database
  Actors and Network database
Bringing new therapies from the lab to patients
Sur Nous
Nos équipes et partenaires
Contact

Condition

Accident vasculaire cérébral
Amyotrophie spinale
Cancer
Diabète
Dystrophie musculaire
Epidermolyse bulleuse
Lésions de la moelle épinière
Maladie d'Alzheimer
Maladie de Huntington
Maladie de Parkinson
Maladie du poumon
Maladie intestinale
Maladies auto-immunes
Maladies cardiaques
Maladies des yeux
Maladies du muscle squelettique
Maladies du neurone moteur
Maladies du sang
Maladies hépatiques
Maladies neurologiques
Maladies rares
Maladies rénales
Paralysie cérébrale
Peau
Sang de cordon
Sclérose en plaques
Reproduction et fertilité

Thème

Bases cellulaires et géniques
Cellules iPS
Cellules souches embryonnaires
Cellules souches sanguines
Découvrir les cellules souches
Édition de gène
Essais cliniques
Ethique et société
Fiches d’information
Ingénierie tissulaire
L'actualité des cellules souches
L'industrie
La recherche
La sang de cordon
Les cellules souches de la peau
Les MSCs
Les traitements non-prouvés
Méthodes et outils
Modélisation des maladies
Normes et réglementation
Organoïdes
Participation de patient
Reprogrammation
Thérapie CAR-T
Thérapie Cellulaire
Thérapie génique
Utilisations actuelles et potentielles

Choisissez une langue

English
Français
Deutsch
Italiano
Polski
Español
Português

ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Fil d'Arianne

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Evaluating/Recording PPI Impact✕
Feedback to/from PPI✕

Showing 5 of 63 results.

Page 6 of 13

2018

Guidance for Researchers: Feedback, PPI Feedback from researchers to PPI contributors

Guidance document on providing feedback by Centre for Research in Public Health and Community Care (CRIPACC), University of Hertfordshire

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2020

Top tips for involving patients in research

Webpage outlining tips for involving patients by Cancer Research UK

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

Narrative Review of Patient Involvement in Organizational Governance

Report of how the Canadian HTA body involve patients in their organisational governance by Canadian Agency for Drugs and technologies in health (CADTH)

Visit this Resource

Research Field

Other

Organisation Type

Development Stage

Health Technology Assessment

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

North America

Content Type

Resource

2019

Patient and public involvement in NIHR research 2006-2019: policy intentions, progress and themes

Report on impact and policies in PPI, published by NIHR Oxford Biomedical Research Centre (BRC Oxford)

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2020

Patient and Public Involvement and Engagement (PPI E) Working together

Toolkit of resources by NIHR Leeds Biomedical Research Centre (BRC Leeds)

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

Pagination

First page
Previous page
…
Page 4
Page 5
Page 6
Page 7
Page 8
…
Next page
Last page

Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

Retour en haut de page

Footer menu

Conditions générales
Vie privée
Accessibilité
Nous contacter

EuroGTC sur Facebook EuroGTC sur Twitter

Ce projet a été financé par le programme de recherche et d'innovation Horizon 2020 de l'Union européenne, dans le cadre de la convention de subvention n° 965241.

© Copyright 2020-2024 EuroGCT and contributing authors