• FAQ
  • Glossary
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FAQ

Why are some conditions more suitable for gene and cell therapies than others?
There is an approved treatment available for my condition - why can't I receive it?
How to look for approved medicines?
How are medicines developed and approved?

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Glossary

Adeno-associated virus (AAV)
Adenovirus
Adult stem cells
Antibody
Antigen
Base editors
Cas9 nuclease
Chimeric Antigen Receptor (CAR)
Chromosome
Clinical trial

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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
  • Standards for PPI✕
Showing 5 of 31 results.
Page 2 of 7

Patient and public participation in commissioning health and care: Statutory guidance for clinical commissioning groups and NHS England

Slide deck by NHS England outlining guidance for patient and public involvement in NHS commissioning
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Research Field

  • Other

Organisation Type

  • Healthcare

Development Stage

  • Service Delivery

Audience

  • Public/Patients
  • Charity Sector
  • Other groups

Country

  • UK

Content Type

  • Resource

CADTH Framework for Patient Engagement in Health Technology Assessment

Values and standards for engaging with the public by Canadian Agency for Drugs and technologies in health (CADTH)
Visit this Resource

Research Field

  • Other

Organisation Type

  • HTA

Development Stage

  • Health Technology Assessment

Audience

  • Researchers/Developers
  • Public/Patients
  • Charity Sector
  • Industry
  • Other groups

Country

  • North America

Content Type

  • Resource
2020

Patient and Public Involvement and Engagement (PPI E) Working together

Toolkit of resources by NIHR Leeds Biomedical Research Centre (BRC Leeds)
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Research Field

  • General

Organisation Type

  • Academia

Development Stage

  • Research and Clinical Development

Audience

  • Researchers/Developers

Country

  • UK

Content Type

  • Resource
2019

Working with patients and patient organisations - a sourcebook for industry

Report with guidelines by The Association of the British Pharmaceutical Industry (ABPI)
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Research Field

  • Pharmaceutical

Organisation Type

  • Other Organisation

Development Stage

  • Research and Clinical Development
  • Service Delivery

Audience

  • Researchers/Developers
  • Public/Patients
  • Charity Sector
  • Industry

Country

  • UK

Content Type

  • Resource
2021

Engage, A Central Resource for Involvement in Health and Social Care

Toolkit of resources by Health and Social care NI
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Research Field

  • General

Organisation Type

  • Healthcare

Development Stage

  • Service Delivery

Audience

  • Public/Patients
  • Other groups

Country

  • UK

Content Type

  • Resource
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