• FAQ
  • Glossary
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FAQ

Why are some conditions more suitable for gene and cell therapies than others?
There is an approved treatment available for my condition - why can't I receive it?
How to look for approved medicines?
How are medicines developed and approved?

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Glossary

Adeno-associated virus (AAV)
Adenovirus
Adult stem cells
Antibody
Antigen
Base editors
Cas9 nuclease
Chimeric Antigen Receptor (CAR)
Chromosome
Clinical trial

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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
  • Case Studies✕
Showing 5 of 66 results.
Page 1 of 14

EATRIS Patient Engagement

Resources by European Advanced Translational Research Infrastructure in Medicine (EATRIS) and their commitment to patient engagement
View this Resource

Research Field

  • General
  • Biomedical Lab

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers

Country

  • Europe

Content Type

  • Resource
2020

Short Guide on Patient Partnerships in Rare Disease Research Projects

Report on partnerships between scientists and patient organisations by European Joint Programme on Rare Diseases
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Research Field

  • General
  • Biomedical Lab

Organisation Type

  • Third Sector/Charity

Development Stage

  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Public/Patients
  • Charity Sector
  • Industry
  • Other groups

Country

  • Europe

Content Type

  • Resource

PREFER - The Patient Perspective

PREFER study is looking at how to include patient preferences in decision making during the medicinal product lifecycle
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Research Field

  • Other

Organisation Type

  • Academia
  • Regulatory Body
  • HTA
  • Industry
  • Third Sector/Charity
  • Other Organisation

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment
  • Service Delivery

Audience

  • Researchers/Developers
  • Public/Patients
  • Charity Sector
  • Industry
  • Other groups

Country

  • Europe

Content Type

  • Resource
2021

The impact of patient and public involvement in the UK Coronavirus Immunology Consortium

Report showcasing PPI involvement in Immunology research by British Society for Immunology (BSI)
Visit this Resource

Research Field

  • General

Organisation Type

  • Third Sector/Charity

Development Stage

  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Public/Patients

Country

  • UK

Content Type

  • Resource

Patient and Public Involvement in Research

Parkinson's UK toolkit of resources supporting PPI in Parkinson's
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Research Field

  • General
  • Biomedical Lab
  • Pharmaceutical

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment
  • Service Delivery

Audience

  • Researchers/Developers
  • Public/Patients
  • Industry

Country

  • UK

Content Type

  • Resource
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