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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

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2022

Improving inclusion for under-served groups in clinical research: Guidance from INCLUDE project

Guidance aiming to support inclusion of underserved groups in research, by NIHR in collaboration with Newcastle University

Visit this Resource

Research Field

General

Organisation Type

Funder
Academia

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2018

Toolkit for increasing participation of Black Asian and Minority Ethnic (BAME) groups in Health and Social Care Research

Report on increasing involvement from BAME groups by National Institute for Health Research Applied Research Collaboration East Midlands (NIHR ARC EM)

View this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

How do I hold a PPI meeting using virtual tools

Tips and tricks to holding virtual meetings by NIHR School for Primary Care Research

Visit this Resource

Research Field

General

Organisation Type

Funder
Academia

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2020

A brief guide to public involvement in funding applications

Toolkit guide by NIHR Research Design Service for involving PPI in funding applications

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2019

NIHR guidance on co-producing a research project

NIHR's report on how to co-produce between researchers and public, guidelines

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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