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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Breadcrumb

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Showing 5 of 168 results.

Page 9 of 34

2019

Planning patient and public involvement in surgical trials

Guide for chief investigators to plan effective PPI to enhance recruitment and retention into clinical trials, by Nuffield Department of Primary Care Health Sciences - Oxford University

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Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2021

Novartis commitment to patients and caregivers

Webpage by Novartis on the importance of working with Patients and Patient Advisory Groups

Visit this Resource

Research Field

Pharmaceutical

Organisation Type

Industry

Development Stage

Research and Clinical Development

Audience

Public/Patients

Country

Content Type

Resource

2016

Patient and public involvement - outcomes that matter to patients and the public

Report and slide deck of previous training for PPI involvement by Oxford Academic Health Science Network (Oxford AHSN)

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2020

Using art to engage with people often not involved in research development and production

Website by NIHR School for Primary Care Research on involving through arts based approaches

Visit this Resource

Research Field

General

Organisation Type

Funder
Academia

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2013

NIHR INVOLVE Budgeting for involvement

Guidance for budgeting for PPI by NIHR Involve

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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