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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Showing 5 of 49 results.

Page 1 of 10

NIH Toolkit for Patient-focused therapy development

Toolkit to help patient groups support the process of developing a treatment or cure for their disease by National Institutes of Health (NIH)

Visit this Resource

Research Field

General
Biomedical Lab
ATMP/Gene Therapy Development

Organisation Type

Other Organisation

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Public/Patients
Charity Sector

Country

North America

Content Type

Resource

Patient and Public Involvement in Research

Parkinson's UK toolkit of resources supporting PPI in Parkinson's

Visit this Resource

Research Field

General
Biomedical Lab
Pharmaceutical

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Researchers/Developers
Public/Patients
Industry

Country

Content Type

Resource

Involving patients

Toolkit of resources for involving patients in healthcare quality improvement projects by Healthcare Quality Improvement Partnership

Visit this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Development Stage

Service Delivery

Audience

Public/Patients
Other groups

Country

Content Type

Resource

2020

A brief guide to public involvement in funding applications

Toolkit guide by NIHR Research Design Service for involving PPI in funding applications

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

Improving Digital Inclusion

Toolkit for identifying and getting around digital exclusion in the community by the Digital Inclusion Toolkit

Visit this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Other groups

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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