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Actors and Networks database

The evolving field of gene and cell therapy is supported by a large community of academic, clinical, translational, regulatory and patient organisations. The Actors and Networks database maps these stakeholders in Europe and beyond, their activities, and resources they have produced. 

EuroGCT has developed and compiled this database for those interested in identifying the actors involved at each stage of the pathways bringing gene and cell therapies from lab to clinic. Coming from an academic perspective, our focus is to map information that has not been mapped elsewhere. This includes documenting the various types of interconnected regulators, patient groups actively involved along the pathways, and non-profit organisations devoted to therapy development. In its first iteration, this database does not yet include commercial partners and service providers.

Additional complementary work by other organisations on GCT stakeholders mapping can be found here.

A scientific paper on actors has also been published in Humanities and Social Sciences Communications. You can find its lay summary here.

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Italian Ministry of Health – Directorate General of Health Prevention (Ministro della Salute – Direzione generale della prevenzione sanitaria)

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for GMO

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Manufacturing
  • Commercialisation

Italian Ministry of the Environment and Energy Security (Ministero dell'Ambiente e della Sicurezza Energética) (MASE)

Region/Country:  
  • Countries in the EU/EEA
  • Italy

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for GMO

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Manufacturing
  • Commercialisation

Italian National Agency for Regional Healthcare Services (Agenzia Nazionale per i Servizi Sanitari Regionali) (AGENAS)

Region/Country:  
  • Countries in the EU/EEA
  • Italy

Type of Actor:

  • Regulators
  • HTA Bodies

Development Stage:

  • Commercialisation

Italian National Blood Center (Centro Nazionale Sangue) (CNS)

Region/Country:  
  • Countries in the EU/EEA
  • Italy

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for Tissues and Cells
  • Competent Authorities for Blood and Blood Components

Development Stage:

  • Manufacturing
  • Commercialisation

Italian National Transplant Center (Centro Nazionale Trapianti) (CNT)

Region/Country:  
  • Countries in the EU/EEA
  • Italy

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for Tissues and Cells

Development Stage:

  • Manufacturing
  • Commercialisation

Italian Patent and Trademark Office (Ufficio Italiano Brevetti e Marchi) (UIBM)

Region/Country:  
  • Countries in the EU/EEA
  • Italy

Type of Actor:

  • Regulators
  • Patent Offices
  • National Patent Offices

Development Stage:

  • Fundamental Research

Joint Nordic HTA-bodies (Denmark, Finland, Iceland, Norway and Sweden) (JNHB)

Region/Country:  
  • Countries in the EU/EEA
  • Denmark
  • Finland
  • Iceland
  • Norway
  • Sweden

Type of Actor:

  • Regulators
  • HTA Bodies

Development Stage:

  • Commercialisation

Karolinska Institutet (KI)

Region/Country:  
  • Countries in the EU/EEA
  • Sweden
Website:  

Type of Actor:

  • Non-profit Research Organisations
  • Academic Bodies

Development Stage:

  • Fundamental Research
  • Clinical Research

Additional information

KI is one of the world’s leading medical universities. Our vision is to advance knowledge about life and strive towards better health for all. Karolinska Institutet accounts for the single largest share of all academic medical research conducted in Sweden and offers the country’s broadest range of education in medicine and health sciences.

Kiwa Belgelendirme Hizmetleri A.Ş.

Region/Country:  
  • Other region/country

Type of Actor:

  • Regulators
  • Medical Devices Entities
  • Notified Bodies

Development Stage:

  • Manufacturing
  • Commercialisation

KIWA CERMET ITALIA S.P.A.

Region/Country:  
  • Countries in the EU/EEA
  • Italy

Type of Actor:

  • Regulators
  • Medical Devices Entities
  • Notified Bodies

Development Stage:

  • Manufacturing
  • Commercialisation
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