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Actors and Networks database

The evolving field of gene and cell therapy is supported by a large community of academic, clinical, translational, regulatory and patient organisations. The Actors and Networks database maps these stakeholders in Europe and beyond, their activities, and resources they have produced. 

EuroGCT has developed and compiled this database for those interested in identifying the actors involved at each stage of the pathways bringing gene and cell therapies from lab to clinic. Coming from an academic perspective, our focus is to map information that has not been mapped elsewhere. This includes documenting the various types of interconnected regulators, patient groups actively involved along the pathways, and non-profit organisations devoted to therapy development. In its first iteration, this database does not yet include commercial partners and service providers.

Additional complementary work by other organisations on GCT stakeholders mapping can be found here.

A scientific paper on actors has also been published in Humanities and Social Sciences Communications. You can find its lay summary here.

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Information Commissioner of the Republic of Slovenia (Republika Slovenija Informacijski pooblaščenec) (IPRS)

Region/Country:  
  • Countries in the EU/EEA
  • Slovenia

Type of Actor:

  • Regulators
  • Data Authorities
  • National Data Authorities

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Translational Research
  • Health Data

Information Commissioner's Office (ICO)

Region/Country:  
  • UK
Website:  

Type of Actor:

  • Regulators
  • Data Authorities
  • National Data Authorities

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Translational Research
  • Health Data

Institut national de la santé et de la recherche médicale (National Institute for Health and Medical Research) (Inserm)

Region/Country:  
  • Countries in the EU/EEA
  • France

Type of Actor:

  • Research Funding Authorities
  • National Research Funding Authorities

Development Stage:

  • Fundamental Research
  • Translational Research
  • Clinical Research

Institut national du cancer (National Institue for Cancer) (Inca)

Region/Country:  
  • Countries in the EU/EEA
  • France

Type of Actor:

  • Research Funding Authorities
  • National Research Funding Authorities

Development Stage:

  • Fundamental Research
  • Translational Research
  • Clinical Research

Institut pro Testováni a Certifikaci, a. s. (Institute for Testing and Certification)

Region/Country:  
  • Countries in the EU/EEA
  • Czechia

Type of Actor:

  • Regulators
  • Medical Devices Entities
  • Notified Bodies

Development Stage:

  • Manufacturing
  • Commercialisation

Instituto Superiore di Sanita'

Region/Country:  
  • Countries in the EU/EEA
  • Italy

Type of Actor:

  • Regulators
  • Medical Devices Entities
  • Notified Bodies

Development Stage:

  • Manufacturing
  • Commercialisation

Intellectual Property Institute Luxembourg (Institut de la propriété intellectuelle Luxembourg) (IPIL)

Region/Country:  
  • Countries in the EU/EEA
  • Luxembourg
Website:  

Type of Actor:

  • Regulators
  • Patent Offices
  • National Patent Offices

Development Stage:

  • Fundamental Research

Intellectual Property Office of Ireland (IPOI)

Region/Country:  
  • Countries in the EU/EEA
  • Ireland

Type of Actor:

  • Regulators
  • Patent Offices
  • National Patent Offices

Development Stage:

  • Fundamental Research

International Patient Organisation for Primary Immunodeficiency (IPOPI)

Region/Country:  
  • Global
Website:  

Type of Actor:

  • Patient Organisations
  • International Patient Organisations

Development Stage:

  • Patient and Public Involvement

Conditions and Diseases:

  • Immune conditions

Additional information

IPOPI is a non-profit international organisation and the leading advocate for primary immunodeficiency (PID) patients worldwide working in collaboration with patients, doctors, politicians, regulators, pharmaceutical industry and other relevant stakeholders.

Intertek Medical Notified Body AB

Region/Country:  
  • Countries in the EU/EEA
  • Sweden

Type of Actor:

  • Regulators
  • Medical Devices Entities
  • Notified Bodies

Development Stage:

  • Manufacturing
  • Commercialisation
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