Descobre
- Descobre
  Saiba mais sobre terapia génica e celular
- Educational Resources Directory
  Educational Resources Directory
- INTENS
  INtestinal Tissue ENgineering Solution
- LEARN
  Listening to the experience of participants in neurosurgical trials
Saiba mais sobre terapia génica e celular
Research Pathways
- Research Pathways
  Bringing new therapies from the lab to patients
- Vias de Investigação
  Levar novas terapias do laboratório aos pacientes
- ATMP Engage
  Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group
- Actors and Network database
  Actors and Networks database
Bringing new therapies from the lab to patients
Sobre nós
As nossas equipas e colaboradores
Contacto

Doença

Acidente vascular cerebral (AVC)
Atrofia muscular espinhal
Cancro
Diabetes
Distrofia muscular
Doença de Alzheimer
Doença de Huntington
Doença de Parkinson
Doença do neurónio motor
Doença intestinal inflamatória
Doença renais
Doenças da vista
Doenças do coração
Doenças do sangue
Doenças hepáticas
Doenças imunológicas
Doenças Neurológicas
Doenças neuromusculares
Doenças pulmonares
Doenças raras
Epidermólise Bolhosa
Esclerose múltipla
Lesões da Medula Espinhal
Paralisia cerebral
Pele
Sangue do cordão umbilical
Reprodução e fertilidade

Tema

Células estaminais da pele
Células estaminais do sangue
Células estaminais embrionárias
Células iPS
Conceitos básicos sobre células e genes
Edição genética
Engenharia de tecidos
Ensaios clínicos
Ética e sociedade
Explorar las células madre
Ficha informativa
Indústria
Investigação
Métodos e Ferramentas
Modelagem de doenças
MSCs
Notícias sobre células estaminais
Organóides
Participação do paciente
Política e Regulamentação
Reprogramação
Sangue do cordão umbilical
Terapia celular
Terapia de células CAR-T
Terapia génica
Tratamentos não comprovados
Usos atuais e potenciais

Escolha o seu idioma

English
Français
Deutsch
Italiano
Polski
Español
Português

ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Rota de navegação

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Roles and Responsibilities✕
PPI Pools/Lists of Organisations✕

Showing 5 of 89 results.

Page 5 of 18

2020

NIHR INVOLVE Different experiences: A framework for considering who might be involved in research

NIHR's report on who to involve in research projects based on INVOLVE study

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2021

Public co-applicants in research

NIHR's report focusing on roles and responsibilities of public co-applicants

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2019

National Standards for Public Involvement

NIHR's outline on the standards for public involvement

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2021

NIHR Payment Guidance for Researchers and Professionals

NIHR's advice on budgeting for involvement, payment rates and information about PPI payments and welfare benefits

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2019

How Can Patient Organisations Work With NICE?

Webinar and slide deck on patient involvement in highly specialised technologies. Published by NICE / Genetic Alliance UK

View this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Regulatory Body
Third Sector/Charity

Development Stage

Regulatory Approval

Audience

Public/Patients
Charity Sector

Country

Content Type

Resource

Pagination

First page
Previous page
…
Página 3
Página 4
Página 5
Página 6
Página 7
…
Next page
Last page

Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

Voltar ao topo

Footer menu

Termos e condições de utilização
Privacidade
Acessibilidade
Contacte-nos

EuroGCT no Facebook EuroGCT no Twitter

Este projecto recebeu financiamento do programa de investigação e inovação Horizon 2020 da União Europeia ao abrigo do acordo de subvenção n.º 965241.

© Copyright 2020-2025 EuroGCT and contributing authors