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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

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Gene and cell therapy 101

Education resources for the public on cell and gene therapy developed by ESGCT

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Other Organisation

Audience

Public/Patients

Country

Europe

Content Type

Resource

Regulatory information

Regulatory resources and requirements for developing ATMPs in Europe curated by ESGCT

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Other Organisation

Development Stage

Regulatory Approval

Audience

Researchers/Developers

Country

Europe

Content Type

Resource

Egality Resources

Resources to improve diversity in clinical trials by Egality

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2019

Being Inclusive in Public Involvement (PI) in Health Research

Guidance on how to be inclusive by EDIS - Equality, Diversity and Inclusion in Science and Health

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Researchers/Developers

Country

Content Type

Resource

Improving Digital Inclusion

Toolkit for identifying and getting around digital exclusion in the community by the Digital Inclusion Toolkit

Visit this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Other groups

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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