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Actors and Networks database

The evolving field of gene and cell therapy is supported by a large community of academic, clinical, translational, regulatory and patient organisations. The Actors and Networks database maps these stakeholders in Europe and beyond, their activities, and resources they have produced. 

EuroGCT has developed and compiled this database for those interested in identifying the actors involved at each stage of the pathways bringing gene and cell therapies from lab to clinic. Coming from an academic perspective, our focus is to map information that has not been mapped elsewhere. This includes documenting the various types of interconnected regulators, patient groups actively involved along the pathways, and non-profit organisations devoted to therapy development. In its first iteration, this database does not yet include commercial partners and service providers.

Additional complementary work by other organisations on GCT stakeholders mapping can be found here.

A scientific paper on actors has also been published in Humanities and Social Sciences Communications. You can find its lay summary here.

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Swedish Authority for Privacy Protection (Integritetsskyddsmyndigheten) (IMY)

Region/Country:  
  • Countries in the EU/EEA
  • Sweden

Type of Actor:

  • Regulators
  • Data Authorities
  • National Data Authorities

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Translational Research
  • Health Data

Swedish Dental and Pharmaceutical Benefits Agency (Tandvårds- Och Läkemedelsförmånsverket) (TLV)

Region/Country:  
  • Countries in the EU/EEA
  • Sweden

Type of Actor:

  • Regulators
  • HTA Bodies

Development Stage:

  • Commercialisation

Swedish Health and Social Care Inspectorate (Inspektionen för vård och omsorg) (IVO)

Region/Country:  
  • Countries in the EU/EEA
  • Sweden
Website:  

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for Tissues and Cells
  • Competent Authorities for Blood and Blood Components

Development Stage:

  • Manufacturing
  • Commercialisation

Swedish Intellectual Property Office (Patent- och registreringsverket) (PRV)

Region/Country:  
  • Countries in the EU/EEA
  • Sweden

Type of Actor:

  • Regulators
  • Patent Offices
  • National Patent Offices

Development Stage:

  • Fundamental Research

Swedish Medical Products Agency (Lakemedelsverket)

Region/Country:  
  • Countries in the EU/EEA
  • Sweden

Type of Actor:

  • Regulators
  • Medicines Agencies
  • National Medicines Agencies
  • Medical Devices Entities
  • Medical Device Authorities
  • National Medical Device Authorities
  • Other National competent authorities
  • Competent Authorities for Tissues and Cells
  • Competent Authorities for Blood and Blood Components
  • Competent Authorities for GMO

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Manufacturing
  • Commercialisation

Swedish National Board of Health and Welfare (Socialstyrelsen)

Region/Country:  
  • Countries in the EU/EEA
  • Sweden

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for Tissues and Cells
  • Competent Authorities for Blood and Blood Components

Development Stage:

  • Manufacturing
  • Commercialisation

Swiss Agency for Therapeutic Products (Startseite Schweizerisches Heilmittelinstitut / Institut suisse des produits thérapeutiques / Istituto svizzero per gli agenti terapeutici) (Swissmedic)

Region/Country:  
  • Other region/country

Type of Actor:

  • Regulators
  • Medicines Agencies
  • Medical Devices Entities
  • Medical Device Authorities
  • National Medical Device Authorities
  • National Medicines Agencies
  • Other National competent authorities
  • Competent Authorities for Blood and Blood Components
  • Competent Authorities for GMO

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Manufacturing
  • Commercialisation

Swiss Federal Coordination Centre for Biotechnology (Kontaktstelle Biotechnologie des Bundes / Bureau de biotechnologie de la Confédération)

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for GMO

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Manufacturing
  • Commercialisation

Swiss Federal Data Protection & Information Commissioner (Eidgenössischen Datenschutz- und Öffentlichkeitsbeauftragten / Préposé fédéral à la protection des données et à la transparence / Incaricato federale della protezione dei dati e della trasparenza) (FDPIC / EDÖB / PFPDT / IFPDT)

Region/Country:  
  • Other region/country

Type of Actor:

  • Regulators
  • Data Authorities
  • National Data Authorities

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Translational Research
  • Health Data

Swiss Federal Institute of Intellectual Property (Eidgenössische Institut für Geistiges Eigentum / Institut Fédéral de la Propriété Intellectuelle / Istituto Federale della Proprietà Intellettuale) (IGE / IPI)

Region/Country:  
  • Other region/country

Type of Actor:

  • Regulators
  • Patent Offices
  • National Patent Offices

Development Stage:

  • Fundamental Research
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