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Actors and Networks database

The evolving field of gene and cell therapy is supported by a large community of academic, clinical, translational, regulatory and patient organisations. The Actors and Networks database maps these stakeholders in Europe and beyond, their activities, and resources they have produced. 

EuroGCT has developed and compiled this database for those interested in identifying the actors involved at each stage of the pathways bringing gene and cell therapies from lab to clinic. Coming from an academic perspective, our focus is to map information that has not been mapped elsewhere. This includes documenting the various types of interconnected regulators, patient groups actively involved along the pathways, and non-profit organisations devoted to therapy development. In its first iteration, this database does not yet include commercial partners and service providers.

Additional complementary work by other organisations on GCT stakeholders mapping can be found here.

A scientific paper on actors has also been published in Humanities and Social Sciences Communications. You can find its lay summary here.

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Polish Personal Data Protection Office (Urząd Ochrony Danych Osobowych) (UODO)

Region/Country:  
  • Countries in the EU/EEA
  • Poland

Type of Actor:

  • Regulators
  • Data Authorities
  • National Data Authorities

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Translational Research
  • Health Data

Polish Transplant Coordinating Center Poltransplant (Centrum Organizacyjno-Koordynacyjne do Spraw Transplantacji) (Poltransplant)

Region/Country:  
  • Countries in the EU/EEA
  • Poland

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for Tissues and Cells

Development Stage:

  • Manufacturing
  • Commercialisation

Polskie Centrum Badan i Certyfikacji S.A.

Region/Country:  
  • Countries in the EU/EEA
  • Poland

Type of Actor:

  • Regulators
  • Medical Devices Entities
  • Notified Bodies

Development Stage:

  • Manufacturing
  • Commercialisation

Portuguese Directorate-General of Health (Direção-Geral da Saúde) (DGS)

Region/Country:  
  • Countries in the EU/EEA
  • Portugal
Website:  

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for Tissues and Cells
  • Competent Authorities for Blood and Blood Components

Development Stage:

  • Manufacturing
  • Commercialisation

Portuguese Environment Agency (Agência Portuguesa do Ambiente) (APA)

Region/Country:  
  • Countries in the EU/EEA
  • Portugal

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for GMO

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Manufacturing
  • Commercialisation

Portuguese Ethics Committee for Clinical Research (Comissão de Ética para a Investigação Clínica) (CEIC)

Region/Country:  
  • Countries in the EU/EEA
  • Portugal

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for GMO

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Manufacturing
  • Commercialisation

Portuguese Institute for Blood and Transplantation Services (Instituto Português do Sangue e da Transplantação) (IPST)

Region/Country:  
  • Countries in the EU/EEA
  • Portugal

Type of Actor:

  • Regulators
  • Other National competent authorities
  • Competent Authorities for Tissues and Cells
  • Competent Authorities for Blood and Blood Components

Development Stage:

  • Fundamental Research
  • Translational Research
  • Clinical Research
  • Manufacturing
  • Commercialisation

Portuguese Institute of Industrial Property (Instituto nacional da propriedade industrial) (INPI)

Region/Country:  
  • Countries in the EU/EEA
  • Portugal

Type of Actor:

  • Regulators
  • Patent Offices
  • National Patent Offices

Development Stage:

  • Fundamental Research

Portuguese National Authority of Medicines and Health Products (Autoridade Nacional do Medicamento e Produtos de Saúde) (Infarmed)

Region/Country:  
  • Countries in the EU/EEA
  • Portugal

Type of Actor:

  • Regulators
  • HTA Bodies
  • Medicines Agencies
  • National Medicines Agencies
  • Medical Devices Entities
  • Medical Device Authorities
  • National Medical Device Authorities
  • Other National competent authorities
  • Competent Authorities for GMO

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Manufacturing
  • Commercialisation

Portuguese National Commission of Data Protection (Comissão Nacional de Proteção de Dados) (CNPD)

Region/Country:  
  • Countries in the EU/EEA
  • Portugal

Type of Actor:

  • Regulators
  • Data Authorities
  • National Data Authorities

Development Stage:

  • Fundamental Research
  • Clinical Research
  • Translational Research
  • Health Data
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