Training providers-Patient Education and Engagement

• EURORDIS Open Academy 
• EUPATI training on patients engagement fundamentals and webinars
• National Institute for Health Research (NIHR) Patient and Public Involvement Resources 
• American Society of Gene & Cell Therapy (ASGCT) webinars and education material 
• European Joint Programme on Rare Diseases (EJP RD) Patient Training 
• The International Society for Stem Cell Research (ISSCR) Patient Handbook on Stem Cell Therapies 
• Understanding Health Research Tools for understanding and reviewing published health research
• Training and resources for patients and consumers, European Medicines Agency (EMA) 
• European Patient Ambassador Programme (EPAP), European Lung Foundation (ELF)
• Patient engagement training, Patient Focused Medicine Development (PFMD) 
• Patient Resources, International Society for Cell & Gene Therapy (ISCT)
• Patient and Public Engagement, British Society for Gene & Cell Therapy (BSGCT)

Gene & Cell Therapy Education

• ARM Foundation Cell & Gene Medicine Education
• British Society for Gene and Cell Therapy (BSGCT) Educational Resource 
• Online Academic Education Course – EJP RD – European Joint Programme on Rare Diseases (ejprarediseases.org)
• Gene therapy 101 within Education section on ESGCT website
• NIH National Human Genomics Research Institute Educational Resources on genomics
• Novartis Explore Gene Therapy
• Bluebird Bio Gene Therapy Education
• Innovative Genomics Institute (IGI) Resources for patients & families, and educational resources
• eLearning Platform, World Federation of Hemophilia (WFH)
  • Learning resources for gene therapy, clinical trials and more, with a focus on Hemophilia.