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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

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Page 8 of 10

2021

Patient and Citizen Involvement Resources and materials

Toolkit of resources for PPI involvement published by Health Technology Assessment International

Visit this Resource

Research Field

Pharmaceutical
Other

Organisation Type

Third Sector/Charity

Development Stage

Health Technology Assessment

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

Other countries

Content Type

Resource

2020

Making a start: A toolkit for Research Charities to begin a PPI relationship

Toolkit of resources for PPI involvement developed by Health Research Charities Ireland (HRCI) and Trinity College

Visit this Resource

Research Field

General

Organisation Type

Academia
Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Charity Sector

Country

Europe

Content Type

Resource

2020

Public Involvement

Toolkit of resources for PPI involvement by Health Research Authority (HRA)

Visit this Resource

Research Field

General

Organisation Type

Healthcare

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2021

Patient and Public Involvement Toolkit

Toolkit of resources for PPI involvement developed by NIHR Biomedical Research Centre Guy's and St Thomas' (Guys and St Thomas' BRC)

Visit this Resource

Research Field

General

Organisation Type

Funder
Academia

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2010

EPF Value+ project

Toolkit report of PPI resources published by European Patient Forum (EPF)

View this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Audience

Public/Patients
Charity Sector

Country

Europe

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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