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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Maintaining/Supporting PPI✕
How/Who to Recruit✕

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Page 8 of 16

2021

Guidelines for incorporating lay and service user representatives

Guidelines published by NIHR Maudsley Biomedical Research Centre (BRC Maudsley) for researchers involving mental health service users in advisory and steering committees for research projects

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2020

Patient and Public Involvement and Engagement (PPI E) Working together

Toolkit of resources by NIHR Leeds Biomedical Research Centre (BRC Leeds)

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2020

Working with patients and patient organisations - a summary

Summary report of the full Sourcebook by The Association of the British Pharmaceutical Industry (ABPI)

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Research Field

Pharmaceutical

Organisation Type

Other Organisation

Development Stage

Research and Clinical Development

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Content Type

Resource

2019

Working with patients and patient organisations - a sourcebook for industry

Report with guidelines by The Association of the British Pharmaceutical Industry (ABPI)

Visit this Resource

Research Field

Pharmaceutical

Organisation Type

Other Organisation

Development Stage

Research and Clinical Development
Service Delivery

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Content Type

Resource

Patient and Public Involvement Resources: Papers and Guidance

Toolkit of resources by MRC Clinical Trials Unit UCL

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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