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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

PPI Basics and Benefits✕
PPI Pools/Lists of Organisations✕

Showing 5 of 93 results.

Page 7 of 19

2021

Our responsibility to patients

Importance of working with Patients and Patient Advisory Groups by Janssen

Visit this Resource

Research Field

Pharmaceutical

Organisation Type

Industry

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Public/Patients
Charity Sector

Country

Content Type

Resource

2016

A short guide to successful patient involvement in EU-funded research

Case study by Innovative Medicines Initiative (IMI), now Innovative Health Initiative (IHI).

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Europe

Content Type

Resource

2020

Diversifying Research Podcast: Promoting Public Involvement in Research

Podcast by Imperial College London discussing how to diversify who is involved in research

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2016

Impact of public involvement on the ethical aspects of research

Report on how PPI can help in the ethical design and conduct of research by Health Research Authority (HRA) and NIHR Involve

Visit this Resource

Research Field

General

Organisation Type

Funder
Healthcare

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2019

Patient and public involvement in research

Interviews about PPI, with videos and text by Healthtalk online

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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