FAQs
Glossary

FAQs

Glossary

Accelerated assessment

Adeno-associated virus (AAV)

Adenovirus

Adult stem cells

Advanced Therapy Investigational Medicinal Product (ATIMP)

Advanced Therapy Medicinal Product (ATMP)

Menu Close

Select language

English
Français
Deutsch
Italiano
Polski
Español
Português

Main navigation

Discover
- Discover
  Discover Gene and Cell Therapy
- Educational Resources Directory
  Educational Resources Directory
- INTENS
  INtestinal Tissue ENgineering Solution
- LEARN
  Listening to the experience of participants in neurosurgical trials
Discover Gene and Cell Therapy
Research Pathways
- Research Pathways
  Bringing new therapies from the lab to patients
- EuroGCT Key Resources
  EuroGCT Key Resources
- ATMP Engage
  Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group
- Actors and Network database
  Actors and Networks database
Bringing new therapies from the lab to patients
About Us
Our team and partners
Contact

Condition

Alzheimer's Disease
Blood disorders
Bowel Disease
Cancer
Cerebral Palsy
Cord Blood
Cystic Fibrosis
Diabetes
Epidermolysis Bullosa
Eye Disease
Heart Disease
Huntington's Disease
Immune Conditions
Kidney Disease
Liver Disease
Lung Disease
Motor Neurone Disease
Multiple Sclerosis
Muscle and Skeletal Diseases
Muscular Dystrophy
Neurological Disorders
Parkinson's Disease
Rare Diseases
Sickle Cell Disease
Skin
Spinal Cord Injuries
Spinal Muscular Atrophy
Stroke
Reproduction and Fertility

Theme

Blood Stem Cells
CAR-T Therapy
Cell and Gene Fundamentals
Cell Therapy
Clinical Trials
Cord Blood
Current and Potential Uses
Disease Modelling
Embryonic Stem Cells
Ethics and Society
Explore Stem Cells
Factsheets
Gene Editing
Gene Therapy
Industry
iPS cells
Methods and Tools
MSCs
Organoids
Patient Involvement
Policy & Regulation
Reprogramming
Research
Skin Stem Cells
Spotlight on Research
Stem Cell News
Tissue Engineering
Unproven Treatments

Select language

English
Français
Deutsch
Italiano
Polski
Español
Português

ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Breadcrumb

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

How/Who to Recruit✕

Showing 5 of 71 results.

Page 6 of 15

2019

Being Inclusive in Public Involvement (PI) in Health Research

Guidance on how to be inclusive by EDIS - Equality, Diversity and Inclusion in Science and Health

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Researchers/Developers

Country

Content Type

Resource

2020

Top tips for involving patients in research

Webpage outlining tips for involving patients by Cancer Research UK

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

Narrative Review of Patient Involvement in Organizational Governance

Report of how the Canadian HTA body involve patients in their organisational governance by Canadian Agency for Drugs and technologies in health (CADTH)

Visit this Resource

Research Field

Other

Organisation Type

Development Stage

Health Technology Assessment

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

North America

Content Type

Resource

2019

Patient and public involvement in NIHR research 2006-2019: policy intentions, progress and themes

Report on impact and policies in PPI, published by NIHR Oxford Biomedical Research Centre (BRC Oxford)

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2021

Guidelines for incorporating lay and service user representatives

Guidelines published by NIHR Maudsley Biomedical Research Centre (BRC Maudsley) for researchers involving mental health service users in advisory and steering committees for research projects

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

Pagination

First page
Previous page
…
Page 4
Page 5
Page 6
Page 7
Page 8
…
Next page
Last page

Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

Footer menu

Terms & Conditions
Privacy
Accessibility
Contact Us

EuroGCT on Facebook EuroGCT on Twitter