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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

PPI Pools/Lists of Organisations✕
Knowledge Building✕

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Page 6 of 18

2021

ATTC Advanced Therapies Events

The Advanced Therapy Treatment Centre (ATTC) webinar series on cell and gene therapies

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Other Organisation

Development Stage

Service Delivery

Audience

Public/Patients

Country

Content Type

Resource

2021

MHRA Patient Involvement Strategy 2021-25

Report outlining how the Medicines and Healthcare products Regulatory Agency (MHRA) will engage patients in their work

Visit this Resource

Research Field

Other

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Public/Patients

Country

Content Type

Resource

Opportunities for patients and the public to be involved in the work of the MHRA

Information on how patients can be involved in work by the Medicines and Healthcare products Regulatory Agency (MHRA)

Visit this Resource

Research Field

Other

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Public/Patients

Country

Content Type

Resource

2021

MHRA Proposed Patient and Public Involvement Strategy 2020-25

Details from a public consultation on the proposed strategy for involving patients in the Medicines and Healthcare products Regulatory Agency (MHRA)

Visit this Resource

Research Field

Other

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Public/Patients

Country

Content Type

Resource

Public Involvement Network Advisory Group Terms of Reference

Terms of reference for patient carer representatives that help inform Scottish Medicines Consortium (SMC) processes, published by Healthcare Improvement Scotland (HIS) and SMC

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Third Sector/Charity

Development Stage

Health Technology Assessment
Service Delivery

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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