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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

PPI Basics and Benefits✕

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2017

Framework for patient and public participation in specialised commissioning

Document published by NHS England on framework for patient and public participation in specialised commissioning

View this Resource

Research Field

Other

Organisation Type

Healthcare

Development Stage

Service Delivery

Audience

Other groups

Country

Content Type

Resource

Patient and public participation in commissioning health and care: Statutory guidance for clinical commissioning groups and NHS England

Slide deck by NHS England outlining guidance for patient and public involvement in NHS commissioning

Visit this Resource

Research Field

Other

Organisation Type

Healthcare

Development Stage

Service Delivery

Audience

Public/Patients
Charity Sector
Other groups

Country

Content Type

Resource

2021

MHRA Patient Involvement Strategy 2021-25

Report outlining how the Medicines and Healthcare products Regulatory Agency (MHRA) will engage patients in their work

Visit this Resource

Research Field

Other

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Public/Patients

Country

Content Type

Resource

2021

MHRA Proposed Patient and Public Involvement Strategy 2020-25

Details from a public consultation on the proposed strategy for involving patients in the Medicines and Healthcare products Regulatory Agency (MHRA)

Visit this Resource

Research Field

Other

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Public/Patients

Country

Content Type

Resource

2021

Our responsibility to patients

Importance of working with Patients and Patient Advisory Groups by Janssen

Visit this Resource

Research Field

Pharmaceutical

Organisation Type

Industry

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Public/Patients
Charity Sector

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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