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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

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EBCD: Experience-based co-design toolkit

Toolkit for patients and staff to co-design services by Point of Care Foundation

Visit this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Development Stage

Service Delivery

Audience

Public/Patients
Other groups

Country

Content Type

Resource

Patient Engagement Management Suite (PEM Suite)

Toolkit of resources by Patient Focused Medicines Development (PFMD)

Visit this Resource

Research Field

General
Biomedical Lab
Pharmaceutical

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Researchers/Developers
Public/Patients
Industry

Country

Europe

Content Type

Resource

2021

Engagement Resources

Toolkit of PPI resources by Patient Centred Outcomes Research Institute (PCORI)

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

North America

Content Type

Resource

PARADIGM Patient Engagement Toolbox

Toolkit of PPI resources for medicines development by PARADIGM

Visit this Resource

Research Field

Biomedical Lab
Pharmaceutical

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment

Audience

Researchers/Developers
Public/Patients
Industry

Country

Europe

Content Type

Resource

2021

Resources for researchers

Toolkit of resources for PPI involvement by NIHR Oxford Health Biomedical Research Centre (Oxford Health BRC)

Visit this Resource

Research Field

General
Biomedical Lab

Organisation Type

Academia

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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