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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

PPI Basics and Benefits✕
PPI Pools/Lists of Organisations✕

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Page 15 of 19

2019

PPI resources for applicants to NIHR research programmes

Toolkit of resources for PPI involvement by The National Institute for Health and Care Research (NIHR)

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2021

Opportunities for public involvement in NHS, public health and social care research

Opportunities for public involvement in NHS, public health and social care research by National Institute for Health and Care Research (NIHR)

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

Getting Started

Generic public engagement resources by NHS England

Visit this Resource

Research Field

Other

Organisation Type

Healthcare

Development Stage

Service Delivery

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

Patient and Public Involvement

Toolkit of resources by NHS Accelerated Access Collaborative (AAC)

Visit this Resource

Research Field

General
Pharmaceutical

Organisation Type

Funder
Healthcare

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Service Delivery

Audience

Researchers/Developers
Public/Patients
Industry

Country

Content Type

Resource

Get Involved in our research (PPIE) Useful resources

Toolkit of resources by Keele University

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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