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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Maintaining/Supporting PPI✕
How/Who to Recruit✕

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Page 13 of 16

2021

Opportunities for public involvement in NHS, public health and social care research

Opportunities for public involvement in NHS, public health and social care research by National Institute for Health and Care Research (NIHR)

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

Getting Started

Generic public engagement resources by NHS England

Visit this Resource

Research Field

Other

Organisation Type

Healthcare

Development Stage

Service Delivery

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

Patient Engagement Toolkit

Toolkit of resources for PPI involvement by Kaiser Permanante

Visit this Resource

Research Field

Biomedical Lab

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

North America

Content Type

Resource

2021

Priority Setting Partnerships (PSP)

Resources about priority setting by James Lind Alliance

Visit this Resource

Research Field

General

Organisation Type

Funder
Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Content Type

Resource

Patient Involvement Guide

A PPI guide published by Innovative Medicines Initiative (IMI), now Innovative Health Initiative (IHI),

Visit this Resource

Research Field

Pharmaceutical

Organisation Type

Industry
Other Organisation

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients
Charity Sector

Country

Europe

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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