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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

PPI Pools/Lists of Organisations✕

Showing 5 of 34 results.

Page 2 of 7

2015

Public Involvement in Clinical Trials

NIHR eeport / guidance on how to involve PPI in clinical trials

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2021

NIHR Payment Guidance for Researchers and Professionals

NIHR's advice on budgeting for involvement, payment rates and information about PPI payments and welfare benefits

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2019

Working with patients and patient organisations - a sourcebook for industry

Report with guidelines by The Association of the British Pharmaceutical Industry (ABPI)

Visit this Resource

Research Field

Pharmaceutical

Organisation Type

Other Organisation

Development Stage

Research and Clinical Development
Service Delivery

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Content Type

Resource

Patient and Public Involvement Resources: Papers and Guidance

Toolkit of resources by MRC Clinical Trials Unit UCL

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2021

Engage, A Central Resource for Involvement in Health and Social Care

Toolkit of resources by Health and Social care NI

Visit this Resource

Research Field

General

Organisation Type

Healthcare

Development Stage

Service Delivery

Audience

Public/Patients
Other groups

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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