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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Breadcrumb

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Evaluating/Recording PPI Impact✕
Feedback to/from PPI✕

Showing 5 of 63 results.

Page 6 of 13

2018

Guidance for Researchers: Feedback, PPI Feedback from researchers to PPI contributors

Guidance document on providing feedback by Centre for Research in Public Health and Community Care (CRIPACC), University of Hertfordshire

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Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2020

Top tips for involving patients in research

Webpage outlining tips for involving patients by Cancer Research UK

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Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

Narrative Review of Patient Involvement in Organizational Governance

Report of how the Canadian HTA body involve patients in their organisational governance by Canadian Agency for Drugs and technologies in health (CADTH)

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Research Field

Other

Organisation Type

Development Stage

Health Technology Assessment

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

North America

Content Type

Resource

2019

Patient and public involvement in NIHR research 2006-2019: policy intentions, progress and themes

Report on impact and policies in PPI, published by NIHR Oxford Biomedical Research Centre (BRC Oxford)

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Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2020

Patient and Public Involvement and Engagement (PPI E) Working together

Toolkit of resources by NIHR Leeds Biomedical Research Centre (BRC Leeds)

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Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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