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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Breadcrumb

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Case Studies✕

Showing 5 of 66 results.

Page 6 of 14

2020

Stakeholder Engagement Report 2018-2019

General report on European Medicines Agency (EMA) stakeholder engagement during 2018-2019

View this Resource

Research Field

Other

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Researchers/Developers
Public/Patients
Industry
Other groups

Country

Europe

Content Type

Resource

2020

Top tips for involving patients in research

Webpage outlining tips for involving patients by Cancer Research UK

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

Narrative Review of Patient Involvement in Organizational Governance

Report of how the Canadian HTA body involve patients in their organisational governance by Canadian Agency for Drugs and technologies in health (CADTH)

Visit this Resource

Research Field

Other

Organisation Type

Development Stage

Health Technology Assessment

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

North America

Content Type

Resource

2020

Patient and Public Involvement and Engagement (PPI E) Working together

Toolkit of resources by NIHR Leeds Biomedical Research Centre (BRC Leeds)

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

An Essential Partnership: A guide for charities working with industry

Guide for patient organisations working with industry by The Association of Medical Research Charities (AMRC)

View this Resource

Research Field

Pharmaceutical

Organisation Type

Other Organisation

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Researchers/Developers
Charity Sector
Industry

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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