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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Nawigacja okruszkowa/Nawigacja breadcrumb

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Evaluating/Recording PPI Impact✕
Feedback to/from PPI✕

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Page 12 of 13

Patient and public involvement and engagement (PPI E) for researchers

Resources published by Great Ormond Street aimed primarily at GOSH and ICH researchers

Visit this Resource

Research Field

General

Organisation Type

Funder
Healthcare

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2010

EPF Value+ project

Toolkit report of PPI resources published by European Patient Forum (EPF)

View this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Audience

Public/Patients
Charity Sector

Country

Europe

Content Type

Resource

Toolkit for PPI

Toolkit report of PPI resources published by Combacte Magnet

Visit this Resource

Research Field

General
Biomedical Lab
Pharmaceutical

Organisation Type

Other Organisation

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval

Audience

Researchers/Developers
Public/Patients
Industry

Country

Europe

Content Type

Resource

Patient Involvement toolkit for researchers

Toolkit of resources developed by Cancer Research UK

Visit this Resource

Research Field

General
Biomedical Lab

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2020

Involving patients and the public: for researchers

Toolkit of resources developed by BRC Royal Marsden

Visit this Resource

Research Field

General

Organisation Type

Funder
Academia

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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