• FAQs
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FAQs

Why are some conditions more suitable for gene and cell therapies than others?
There is an approved treatment available for my condition - why can't I receive it?
How to look for approved medicines?
How are medicines developed and approved?

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Glossar

Adeno-associated virus (AAV)
Adenovirus
Adult stem cells
Antibody
Base editors
Cas9 nuclease
Chimeric Antigen Receptor (CAR)
Chromosome
Clinical trial
CRISPR-Cas

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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
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Content Type
    Showing 5 of 168 results.
    Page 22 of 34

    Narrative Review of Patient Involvement in Organizational Governance

    Report of how the Canadian HTA body involve patients in their organisational governance by Canadian Agency for Drugs and technologies in health (CADTH)
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    Research Field

    • Other

    Organisation Type

    • HTA

    Development Stage

    • Health Technology Assessment

    Audience

    • Researchers/Developers
    • Public/Patients
    • Charity Sector
    • Industry
    • Other groups

    Country

    • North America

    Content Type

    • Resource

    British Society for Cell and Gene Therapy

    Website promoting ethical and gene- and cell-based technologies developed by British Society for Cell and Gene Therapy (BSGCT)
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    Research Field

    • ATMP/Gene Therapy Development

    Organisation Type

    • Third Sector/Charity

    Development Stage

    • Identifying/Prioritising Patient Need
    • Research and Clinical Development
    • Regulatory Approval
    • Health Technology Assessment
    • Service Delivery

    Audience

    • Public/Patients

    Country

    • UK

    Content Type

    • Resource

    Patient and Public Involvement

    Webpage created by the British Heart Foundation
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    Research Field

    • General

    Organisation Type

    • Third Sector/Charity

    Development Stage

    • Research and Clinical Development

    Audience

    • Researchers/Developers

    Country

    • UK

    Content Type

    • Resource
    2019

    Patient and public involvement in NIHR research 2006-2019: policy intentions, progress and themes

    Report on impact and policies in PPI, published by NIHR Oxford Biomedical Research Centre (BRC Oxford)
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    Research Field

    • General

    Organisation Type

    • Academia

    Development Stage

    • Research and Clinical Development

    Audience

    • Researchers/Developers

    Country

    • UK

    Content Type

    • Resource
    2021

    Guidelines for incorporating lay and service user representatives

    Guidelines published by NIHR Maudsley Biomedical Research Centre (BRC Maudsley) for researchers involving mental health service users in advisory and steering committees for research projects
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    Research Field

    • General

    Organisation Type

    • Academia

    Development Stage

    • Research and Clinical Development

    Audience

    • Researchers/Developers

    Country

    • UK

    Content Type

    • Resource
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