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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Brotkrumennavigation

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

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Engagement in health research literature explorer

Searchable repository of journal articles by Patient Centred Outcomes Research Institute (PCORI)

Visit this Resource

Organisation Type

Funder

Country

North America

Content Type

Repository

Engagement tool and resources repository

Searchable website with downloadable resources by Patient Centred Outcomes Research Institute (PCORI)

Visit this Resource

Organisation Type

Funder

Country

North America

Content Type

Repository

RRI Toolkit

Searchable website by Responsible Research and Innovation (RRI)

Visit this Resource

Organisation Type

Third Sector/Charity

Country

Europe

Content Type

Repository

EUPATI project

Searchable webpages on Medicines R&D, Patient Engagement and Training resources by European Patients’ Academy on Therapeutic Innovation (EUPATI)

Visit this Resource

Organisation Type

Third Sector/Charity

Country

Europe

Content Type

Repository

Patient Experience Library

Patient Experience Library contains over 20,000 documents (up to three years old) on patient experience and involvement

Visit this Resource

Organisation Type

Third Sector/Charity

Country

Content Type

Repository

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Dieses Projekt wurde aus Mitteln des Forschungs- und Innovationsprogramms Horizont 2020 der Europäischen Union unter der Finanzhilfevereinbarung Nr. 965241 finanziert.

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