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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Brotkrumennavigation

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Knowledge Building✕

Showing 5 of 65 results.

Page 10 of 13

2018

Cell, gene and regenerative therapies at UCL and NHS partner trusts

Report into the partnership working of University College London (UCL), NHS and industry, published by Autolus - UCL

View this Resource

Research Field

Pharmaceutical
ATMP/Gene Therapy Development

Organisation Type

Academia
Industry

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Industry

Country

Content Type

Resource

Cell and Gene Medicine Education

Educational resources by ARM Foundation

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Third Sector/Charity

Audience

Public/Patients

Country

North America

Content Type

Resource

An Essential Partnership: A guide for charities working with industry

Guide for patient organisations working with industry by The Association of Medical Research Charities (AMRC)

View this Resource

Research Field

Pharmaceutical

Organisation Type

Other Organisation

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Researchers/Developers
Charity Sector
Industry

Country

Content Type

Resource

2019

Working with patients and patient organisations - a sourcebook for industry

Report with guidelines by The Association of the British Pharmaceutical Industry (ABPI)

Visit this Resource

Research Field

Pharmaceutical

Organisation Type

Other Organisation

Development Stage

Research and Clinical Development
Service Delivery

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Content Type

Resource

Patient and Public Involvement Resources: Papers and Guidance

Toolkit of resources by MRC Clinical Trials Unit UCL

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

Pagination

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Dieses Projekt wurde aus Mitteln des Forschungs- und Innovationsprogramms Horizont 2020 der Europäischen Union unter der Finanzhilfevereinbarung Nr. 965241 finanziert.

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