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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Brotkrumennavigation

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Knowledge Building✕

Showing 5 of 65 results.

Page 9 of 13

Regulatory information

Regulatory resources and requirements for developing ATMPs in Europe curated by ESGCT

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Other Organisation

Development Stage

Regulatory Approval

Audience

Researchers/Developers

Country

Europe

Content Type

Resource

CADTH Framework for Patient Engagement in Health Technology Assessment

Values and standards for engaging with the public by Canadian Agency for Drugs and technologies in health (CADTH)

Visit this Resource

Research Field

Other

Organisation Type

Development Stage

Health Technology Assessment

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

North America

Content Type

Resource

Narrative Review of Patient Involvement in Organizational Governance

Report of how the Canadian HTA body involve patients in their organisational governance by Canadian Agency for Drugs and technologies in health (CADTH)

Visit this Resource

Research Field

Other

Organisation Type

Development Stage

Health Technology Assessment

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

North America

Content Type

Resource

British Society for Cell and Gene Therapy

Website promoting ethical and gene- and cell-based technologies developed by British Society for Cell and Gene Therapy (BSGCT)

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Public/Patients

Country

Content Type

Resource

2018

Cell and gene therapies explained

Report explaining how cell and gene therapies work by UK Bioindustry Association (BIA)

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Third Sector/Charity

Audience

Public/Patients

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Dieses Projekt wurde aus Mitteln des Forschungs- und Innovationsprogramms Horizont 2020 der Europäischen Union unter der Finanzhilfevereinbarung Nr. 965241 finanziert.

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