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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Brotkrumennavigation

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Knowledge Building✕

Showing 5 of 65 results.

Page 7 of 13

2020

Health Outcomes Observatory (H2O) project

Project by European Patient Forum (EPF)

View this Resource

Research Field

General
Biomedical Lab
Pharmaceutical

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Europe

Content Type

Resource

2014

Revised framework for interaction between the European Medicines Agency and patients and consumers and their organisations

Generic PPI framework by the European Medicines Agency

Visit this Resource

Research Field

Other

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Researchers/Developers
Public/Patients

Country

Europe

Content Type

Resource

2020

EMA Regulatory Science to 2025 - strategic reflection

Report reflecting on the EMA's regulatory framework by the European Medicines Agency

View this Resource

Research Field

Other

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Researchers/Developers
Public/Patients

Country

Europe

Content Type

Resource

Advanced Therapy Classification

Classification of ATMPs by the European Medicines Agency

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Regulatory Body

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

Europe

Content Type

Resource

2018

Guideline on safety and efficacy follow up and risk management of ATMPs

Report on guidance on long term follow up for ATMPs by the European Medicines Agency

View this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Researchers/Developers

Country

Europe

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Dieses Projekt wurde aus Mitteln des Forschungs- und Innovationsprogramms Horizont 2020 der Europäischen Union unter der Finanzhilfevereinbarung Nr. 965241 finanziert.

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