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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Brotkrumennavigation

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

PPI Pools/Lists of Organisations✕
Knowledge Building✕

Showing 5 of 86 results.

Page 4 of 18

2017

Things to consider when reviewing research applications / proposals

NIHR Top tips for PPI in reviewing research applications

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2021

NIHR Payment Guidance for Researchers and Professionals

NIHR's advice on budgeting for involvement, payment rates and information about PPI payments and welfare benefits

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2019

How Can Patient Organisations Work With NICE?

Webinar and slide deck on patient involvement in highly specialised technologies. Published by NICE / Genetic Alliance UK

View this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Regulatory Body
Third Sector/Charity

Development Stage

Regulatory Approval

Audience

Public/Patients
Charity Sector

Country

Content Type

Resource

Patient and Public Involvement Policy

Policy document that outlines patient and public engagement policies at National Institute for Health and Care Excellence (NICE)

Visit this Resource

Research Field

Other

Organisation Type

Regulatory Body

Development Stage

Regulatory Approval

Audience

Public/Patients

Country

Content Type

Resource

Engagement Practitioners’ Network

NHS England's support and resources for public engagement

Visit this Resource

Research Field

Other

Organisation Type

Healthcare

Development Stage

Service Delivery

Audience

Other groups

Country

Content Type

Resource

Pagination

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Dieses Projekt wurde aus Mitteln des Forschungs- und Innovationsprogramms Horizont 2020 der Europäischen Union unter der Finanzhilfevereinbarung Nr. 965241 finanziert.

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