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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Brotkrumennavigation

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Evaluating/Recording PPI Impact✕
Feedback to/from PPI✕

Showing 5 of 63 results.

Page 2 of 13

2010

The PIRICOM study - A systemmatic review of the conceptualisation, measurement, impact and outcomes of patients and public involvement in health and social care research

Report on measuring impact both positive and negative of involving PPI by UKCRC and Royal College of Nurses and University of Warwick

Visit this Resource

Research Field

General

Organisation Type

Academia
Other Organisation

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Health Technology Assessment

Audience

Researchers/Developers

Country

Content Type

Resource

2019

Involving patients and the public in research

Review of PPI by THIS Institute - Cambridge University and RAND Europe

Visit this Resource

Research Field

General

Organisation Type

Academia
Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

Supporting patient and public involvement in industry-led research Guidance for charities

Report for charities working with industry by Shared Learning Group

View this Resource

Research Field

Pharmaceutical

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment

Audience

Charity Sector
Industry

Country

Content Type

Resource

2014

The public involvement impact assessment framework guidance

Report on measuring impact of involving PPI by Public Involvement Impact Assessment Framework (PiiAF)

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2017

Guidance for feedback to PPI contributors

Parkinson's guidance on how to give feedback by email

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Dieses Projekt wurde aus Mitteln des Forschungs- und Innovationsprogramms Horizont 2020 der Europäischen Union unter der Finanzhilfevereinbarung Nr. 965241 finanziert.

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